The time to fight for women with Myalgic Encephalomyelitis—often called Chronic Fatigue Syndrome—who have been dismissed and ignored is now. Here’s how.
Women suffering from chronic fatigue syndrome remain undiagnosed and untreated, for a tangle of reasons with sexism at the core.
It was late afternoon, and I could barely get my body out of bed. In fact, I had been in bed most of the last few days—or was it weeks? Even with all that rest, my legs were still too weak to stand up.
For decades, my mom and I have been a dynamic duo using the arts to creatively fight for women’s rights. And now we are using the arts to fight for my life.
Laurie Edwards is all too familiar with life in the “kingdom of the sick,” which is how cultural critic Susan Sontag famously described the hidden world of chronic illness. From an early age, the 32-year old writer, blogger and mother of a young daughter has spent weeks of her life in the hospital and endured […]
Rivka Solomon’s 2002 anthology, “That Takes Ovaries!,” still inspires action. That book (and play of the same name) even spurred its own international movement, serving as a blueprint for at least 600 open-mike speak-outs and performances in which girls and women celebrate their own “ovarian acts.” But Rivka has done much of this from bed.
What appears at first to be a simple creature is actually a complex being, capable of everything any other animal form is capable of: a complex love life, an epicurean appetite, finding a comfortable place to sleep, skilled locomotion, multiple defense mechanisms…
In mid-May, supported by Reps. Tammy Baldwin (D-WI) and Jan Schakowsky (D-IL) and other prominent lawmakers, a group of advocacy organizations launched the “Campaign to End Chronic Pain in Women.” The campaign is aimed at conditions that predominantly (or only) affect women, such as chronic fatigue syndrome, interstitial cystitis and vulvodynia. It will tackle the discrimination and […]
I hear it all the time: Why don’t doctors listen to women? Who would know their own bodies better? Yet time and time again, women tell their doctors how they are feeling only to have the doctors make the leap to diagnosing the women as depressed or overreacting, or give some other dismissive response. Why? How do […]