The Trump’s administration’s unprecedented war on LGBTQ+ health research—erasing data, censoring science and threatening lives—demands urgent resistance from the medical and research communities.
For the first time in a long time, I was scared. Two weeks after the election, I gave a lecture I’ve delivered countless times, on the critical need to measure sexual orientation and gender identity in health research. Such measures are necessary to identify the unique health needs of lesbian, gay, bisexual and transgender (LGBT) people. In my 25 years of doing research in and with LGBT communities, this is a topic that has shaped my career.
Yet this time, I began my lecture with a caveat: I was uncertain—and afraid—of what the new administration might mean for the hard-won progress we’ve made in LGBT health research, to say nothing of the civil rights gained for my community in the past 30 years.
Not only was my fear justified. It was understated.
Within the first three weeks of Donald Trump’s presidency, an avalanche of executive orders and questionably legal actions have validated my fears, leaving me unsteady and reeling. The Trump administration has aimed to disrupt—if not destroy—research and the scientific process … most especially research focused on LGBT populations, with transgender and non-binary people expressly targeted.
The administration’s actions have been swift and ruthless.
Federal websites containing critical HIV/AIDS and LGBT health resources have vanished overnight. The Sexual and Gender Minority Research Office’s entire online presence, gone. Crucial datasets that countless researchers depend on, like the Youth Risk Behavior Survey, are being restricted. Alarmingly, CDC scientists are to purge their research of “forbidden” terms, including “LGBT,” “transgender” and “nonbinary” and withdraw these papers from publication. And the work of multiple federal agencies is already being impacted by the Orwellian efforts to root out language associated with diversity, equity and inclusion.
These are unprecedented acts of political censorship that strike at the heart of scientific integrity.
The scale of this assault demands more than conventional resistance. While contacting congressional representatives remains important, we need bold, unprecedented action. Professional organizations have to step beyond their traditional roles and into the frontlines of this fight.
The American Public Health Association filed a lawsuit to challenge federal funding freezes. The American College of Obstetricians and Gynecologists has publicly condemned censorship and used their website to post some of the purged data. Organizations that rely on federal data should publicly take a stand, much like the American Association for Public Opinion Research just did. These aren’t just commendable actions; they’re blueprints for what every medical and scientific organization should do immediately.
Academic publishers and journal editors can no longer remain neutral. They have an ethical imperative to actively resist censorship and protect academic freedom. Their platforms, influence and resources need to be deployed in this fight—now, not after more damage is done.
A commentary by editors of the British Medical Journal is an excellent example. In it, they forcefully decry the Trump administration’s ludicrous order for CDC scientists to withdraw or retract scientific articles containing the aforementioned forbidden words, plainly explaining, “This is not how it works.” Article retractions, they note, do not happen on demand. They happen when there is evidence of data fabrication or manipulation, not because of political pressure.
Some may imagine that silence in the face of injustice will shield them from harm, particularly if their work is seemingly unrelated to issues of sexual orientation, gender or gender identity. But when healthcare data and related research about LGBT groups are suppressed, it is not just scientific integrity that is undermined. We’re actively worsening health outcomes and costing lives. And this is a cost we all will bear.
Strengthening our cross-issue collaborations and advocacy efforts is imperative. This crisis demands unprecedented coalition-building across scientific disciplines, civil rights organizations and public health institutions. The administration’s assault on LGBT people and health research, as well as science writ large, may seem overwhelming. They are counting on our paralysis and division. We should not—must not—fall prey to this tactic.
It the midst of this deliberately wrought chaos, we must also take care of each other and ourselves. We cannot let these actions crush our spirit and obliterate our hope. I have found comfort in the work of Rebecca Solnit, author of Hope in the Dark, who reminds us that hope is itself an act of resistance. “They want you to feel powerless and surrender and let them trample everything, and you are not going to let them,” she posted on her site, “Meditations in an Emergency,” recently. “The fact that we cannot save everything does not mean we cannot save anything, and everything we can save is worth saving.”
Science is worth saving. Speak up. Push back. Build coalitions. File lawsuits. Protect data. Continue research. The future of science and countless lives hang in the balance. We cannot wait another day. We will not surrender.
